Your Healthy Family

Aug 28, 2012 1:39 PM by Marissa Torres

A story of hope: 6 year old battling Muscular Dystrophy


This coming Sunday, KOAA News 5 will be hosting the annual Muscular Dystrophy Telethon.

Leading up to the big day, we'll be showing you stories of hope and courage. From a man who was diagnosed around the same time as 4 of his siblings, to a 12 year old boy who also battles autism.

First, we want to introduce you to a vibrant and spunkier than ever 6 year old. If there's one thing she wants you to know, it's that nothing can stand in her way.

Kyra Brockberg is like any other 6 year old girl, but her personality comes with a little bit more zing.

"She's a stubborn 6 year old with an attitude," says Sarah Brockberg, Kyra's mom, as Kyra gives her an "eye-brow" raised glance from across the room. "Her personality is amazing. Even though she can't use her hands, her leg muscles, her facial expressions kind of express how she wants to get her vocals out."

At just 9 months old, Kyra got the diagnosis that would change her life forever. She was born with merosin negative congenital muscular dystrophy. It's a rare form of the disease that not only attacks muscles in the arms and legs, but severely weakens Kyra's neck.

As a result, Kyra has always been in a wheelchair. For her, it's just a way to get around. Over time, Sarah says Kyra's grown more comfortable with her situation and now, when curious kids apprach the 6 year old, inquiring about the chair, she simply responds with, "I don't have muscles like you."
Sarah says the new found bravery is all thanks to MDA Summer Camp.

"She was a little shy when kids would ask her or stare at her. She would ask me, mommy, why are kids staring at me? Coming back {from camp}, she would actually go up to them and say, 'hi' and introduce herself."

Sarah says camp also gave Kyra brand new experiences she might not have gotten elsewhere.

" We would dress up like pirates and then we had a dance," says Kyra.

Kyra also got a chance to go fishing off the dock; even cruised around in a motorcycle.

"Just to see her act like a typical child, that's kind of our goal. Not to put the disability first."

 

 

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